Jive, while you are at it, ask to get tested for Marfan disease also. Since Ehlers is a genetic mistake in the synthesis of colagen (fibrilar protein) it could be related for the disease I mentioned up there, which is an alteration of elastin (also fibrilar protein) which can have way more severe consequences.
Good luck
EDIT: Yes, Marfan is the alteration which causes blood-vessel and artery problems. The thing is that the aorta can be damaged VERY easily.
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