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TranceAddict Forums > Local Scene Info / Discussion / EDM Event Listings > USA > USA - New York > I kindly ask for your prayers......
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euphoria
Moderator



Registered: Sep 2003
Location: New York
Update on my son.....

I am going through a very tough situation right now involving my first and only child. I just returned from speaking with his doctor.

I would like to share it with you since it seems that my only comfort or release comes from talking about it.

As most of you know I have a boy going on 5 years old this July. Over the course of his development we have noticed learning disablility and behavioral issues. We though that it would pass or he would grow out of it by being around other children to set an example. Unfortunately this is not the case.

My doctor has been monitoring his progress over the years and recently gave him tests to fill out his application for school and noticed some abnormal behavior and a delay in his progress. He thought that my son was hearing imparied and sent him for a specialized hearing test that he did not have to participate in since he seems fairly unresponsive.

He was carefully observed and we took notes on his behavior. After doing this we have done reasearch to find out that he has 8 out of 10 of the symptoms for something called "Angelmans Syndrome" which is similar to mild autism. The doctor told me he noticed things before but was unsure and did not want to mention them so sooner due to the fact that it is hard to deal with and many parents get quite defensive so he wanted to be absuletely sure. His hearing results came out fine and that is when the doctor knew something was wrong. I discussed his behavior with him and he is taking this issue very seriously.

He has refered me to a Pediatric Neurologist affiliated with NYU to run extensive testing to diagnose his condition. My son looks completely normal and from time to time acts like any other child, but at times his actions are disturbing. I am having a very hard time dealing with this and after talking to the doctor over the phone I just broke down and cried with my manager and was sent home for the day. I am a nervous wreck and for those of you that have children you can image how hard this can be. At this point I am just trying to relax and hope for the best.

I ask for your prayers for my son and my family to get us through this. If anyone has a similar situation they would like to share or any advice they can give me I would appreciate it.






___________________
Electronic Night Life
<3

Last edited by euphoria on May-18-2005 at 14:27

Old Post Apr-26-2005 20:44  United States
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phoenixBEBE
rainbows abound 7-5-13



Registered: Jul 2003
Location: 2012. Everything changes after this year :) <3 so can't wait.

oh munchy!!!!!!!!!

Z **hugz** i pray everything will turn out aiite. hes such a swt and awesome kid
i think ur an awesome mother

ur family is def in my thoughts babe <3 call me if u need to talk


___________________
__________________________________
July 5, 2013, my heart

Last edited by phoenixBEBE on Apr-26-2005 at 21:09

Old Post Apr-26-2005 20:46  United States
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sandstorm03
...



Registered: Feb 2003
Location:

, maybe he will still grow out of it


___________________
Time exists so everything doesn't happen at once. Space exists so everything doesn't happen to you

Old Post Apr-26-2005 20:49  Italy
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LuNaSeA
presque rien



Registered: Apr 2002
Location: Madison, Wisconsin

i will keep you both in my prayers z... i wish i had more advice to give :/


___________________
>>Bestest Video EvAr<<

Old Post Apr-26-2005 20:50  Italy
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Miss Bliss
DERELICTS & DEGENERATES



Registered: Mar 2004
Location: Bern, Switzerland

What a handsome little guy... I remember meeting him once.
You are a wonderful mother and you are strong enough to take life as it comes... I will keep you and Munchy in my thoughts and hope you can all make it through. But remember that you still have a wonderful son who loves you and who will be fine. Good luck Z! Let us all know if we can help.

Old Post Apr-26-2005 20:54  Switzerland
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SID133
pizza.....



Registered: Apr 2004
Location:

im not a praying kind of person but for the cause you have mine


good luck


___________________
"Her lips were red, her looks were free,
Her locks were yellow as gold :
Her skin was as white as leprosy,
The Night-mare LIFE-IN-DEATH was she,
Who thicks man's blood with cold."

Samuel Taylor Coleridge

Old Post Apr-26-2005 20:58  United States
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madhattared
Impeach.



Registered: Jun 2004
Location: Brooklyn

he's def a cute little guy =)
we're here with plenty of prayers


___________________
In the beginning there was Jack. And Jack had a groove. And from this groove came the groove of all grooves. And while one day viciously throwing down on his box Jack boldly declared "Let there be house!" And house music was born. I am the creator and this is my house and in my house there is only house music. But I am not so selfish because once you enter my house it then becomes our house and our house music and you see no one man owns house because house music is a universal language spoke and understood by all. You see, house is a feeling that no one can understand really unless you're deep into the vibe of house. House is an uncontrollable desire to jack your body and as I told you before this is our house and our house music. In every house you understand, there is a keeper and in this house the keeper is Jack.

Old Post Apr-26-2005 21:00  United States
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vtec junkie
slave to the dark beat



Registered: Oct 2002
Location: In the zone, chief

Z your son is in my prayers. Im sorry to hear this but keep your head up girl....Im sure he will turn out just fine. If you every need anything, you know how to get ahold of me.


___________________

Old Post Apr-26-2005 21:01  United States
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dj tek
SSU MF !



Registered: Feb 2002
Location: TransFixedST8

hope everything works out Z, your son is adorable...


___________________
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RHODE KILL 2 @ THE RANCH [RI] -18/19/20 July 2008
WEBSITE-MYSPACE-[email protected]

Old Post Apr-26-2005 21:02  South Korea
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blitzm
Senior tranceaddict



Registered: Jul 2004
Location: Va

Keep your head up babe! Both you and your son will be in my prayers and like it has been said before me, let us know if we can be of any help!


___________________
b l i t z

Old Post Apr-26-2005 21:05  Colombia
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verndogs
GET THE TANK!



Registered: Jan 2004
Location: Sports Discussion Forum - NYC




i'm sorry to hear


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quote:
[11:58] Bas //: fuck he's hot

Old Post Apr-26-2005 21:09  Philippines
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euphoria
Moderator



Registered: Sep 2003
Location: New York

Well I just made the appointment with the neurologist, since he is a new patient there the earliest I could get the appointment is 5-17-05 so until then I am going to be nervous as hell. In worse news I found out the doctor we were refered to is dropping out from all insurance in September so if he still needs treatment by then we will have to be transfered to someone else. I dont know how they go about testing but I am sure he is going to be scared to death. He doesnt take to kindly to doctors as it is but what kid does I guess.

I am willing to do whatever it takes and hope for the best. At this point I have to talk to all of the family on both sides to find out if there is any history of mental illness in any relatives because I am sure the doctor will ask.


___________________
Electronic Night Life
<3

Old Post Apr-26-2005 21:12  United States
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TranceAddict Forums > Local Scene Info / Discussion / EDM Event Listings > USA > USA - New York > I kindly ask for your prayers......
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