|
hypermobility
|
View this Thread in Original format
| dj_alfi |
| anyone here has it? |
|
|
| Vector A |
Yes, in my fingers, elbows, shoulders, knees.
Why? |
|
|
| dj_alfi |
Just wondering if there anyone else who's as poorly put together as me :)
Have you recieved medical treatment of any kind for your problems? And what about pain?
I have it pretty much throughout my body. Especially my spine, so I pretty much wake up several times every ing night drenched in sweat because of muscle spasms. Oh and my right knee is totally ed, I can 'detach' my calf from the knee joint, any direction i want.
Last couple of years it's been getting more and more painful, and now I've been sent to a specialist to see if I have Ehlers-Danlos Syndrome type 3/hypermobility type, so that's always fun. |
|
|
| Vector A |
No medical treatment for HM specifically. The rheumatologist I saw said that I had EDS Type III. Had a couple cardiac ultrasounds to check for heart issues. I have high blood pressure, but that is probably unrelated (my dad has it, too, with no hypermobility).
I'm very fortunate as far as pain. I did something to my knee a while ago and I don't think it ever healed properly -- I no longer run because of it, and it hurts sometimes. And my back "goes out" occasionally and feels stiff many mornings (don't know if this is related to hypermobility or not). But other than that I have been pretty much fine my whole life. Which I guess is kind of unusual for someone with hypermobility all over the place. Hope it stays that way! |
|
|
| Vector A |
| Oh, also neither of my parents have hypermobility, nor my brother or any of my relatives. I guess I'm just the weird mutant. :thepirate |
|
|
| dj_alfi |
Oh a fellow EDS'er... Do you get mad awesome scars too? Like they're wider than normal but skin is thinner than on regular ppl. I've got a pretty bad ass one about the size of my thumb on my wrist.
The back going out is most definitely the hypermobility. On me it's just a matter of not paying enough attention when turning over in bed etc. It suuuuuuucks.
How old are you by the way? I know most people with EDS3 it doesnt really kick in until late twenties. Started getting BAD at 25-26 for me. But I think I havent noticed too much of the pain, being a wake&bake kinda guy, so it's taken me until now to seek professional help.
And that's really weird, I don't have any hypermobile relatives either.
Maybe we're adopted?
:thepirate |
|
|
| Vector A |
I will be 28 soon. I get scars somewhat frequently, but they don't look unusual. I believe odd scarring is supposed to be more common in EDS I and II than in Type III.
I really doubt that I am adopted, since my face is practically a copy of my dad's. :p |
|
|
| dj_alfi |
| quote: | Originally posted by Vector A
I will be 28 soon. I get scars somewhat frequently, but they don't look unusual. I believe odd scarring is supposed to be more common in EDS I and II than in Type III. |
Skin alterations are also often present in EDS3, although it's not nearly as ellastical (sp?) as in 1 and 2.
| quote: | | I really doubt that I am adopted, since my face is practically a copy of my dad's. :p |
:p |
|
|
| Joss Weatherby |
| They need to stop naming diseases/conditions that sound ty with names that make them sound awesome. Hypermobility makes it sound like you guys are able to teleport or some like that. :stongue: |
|
|
| WittyHandle |
Head shoulders knees and toes
Knees and toes |
|
|
| dj_alfi |
For the shoulder people; How often does you shoulder subluxate? And how much force is needed?
For me it's eough to carry like shopping bags for them to pop out. Also after I've started working out I can do it just by using the shoulder/arm muscles, I don't know what they're called, but it looks freaky. :D |
|
|
| Looney4Clooney |
| is there not a more derogative term for this condition ? hypermobility sounds like something i want. |
|
|
|
|
