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I kindly ask for your prayers......
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| ZzZ The Goddess |
I am going through a very tough situation right now involving my first and only child. I just returned from speaking with his doctor.
I would like to share it with you since it seems that my only comfort or release comes from talking about it.
As most of you know I have a boy going on 5 years old this July. Over the course of his development we have noticed learning disablility and behavioral issues. We though that it would pass or he would grow out of it by being around other children to set an example. Unfortunately this is not the case.
My doctor has been monitoring his progress over the years and recently gave him tests to fill out his application for school and noticed some abnormal behavior and a delay in his progress. He thought that my son was hearing imparied and sent him for a specialized hearing test that he did not have to participate in since he seems fairly unresponsive.
He was carefully observed and we took notes on his behavior. After doing this we have done reasearch to find out that he has 8 out of 10 of the symptoms for something called "Angelmans Syndrome" which is similar to mild autism. The doctor told me he noticed things before but was unsure and did not want to mention them so sooner due to the fact that it is hard to deal with and many parents get quite defensive so he wanted to be absuletely sure. His hearing results came out fine and that is when the doctor knew something was wrong. I discussed his behavior with him and he is taking this issue very seriously.
He has refered me to a Pediatric Neurologist affiliated with NYU to run extensive testing to diagnose his condition. My son looks completely normal and from time to time acts like any other child, but at times his actions are disturbing. I am having a very hard time dealing with this and after talking to the doctor over the phone I just broke down and cried with my manager and was sent home for the day. I am a nervous wreck and for those of you that have children you can image how hard this can be. At this point I am just trying to relax and hope for the best.
I ask for your prayers for my son and my family to get us through this. If anyone has a similar situation they would like to share or any advice they can give me I would appreciate it.
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| bubbleravegirl |
oh munchy!!!!!!!!! :(
Z **hugz** i pray everything will turn out aiite. hes such a swt and awesome kid
i think ur an awesome mother
ur family is def in my thoughts babe <3 call me if u need to talk |
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| sandstorm03 |
| :(, maybe he will still grow out of it |
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| LuNaSeA |
| i will keep you both in my prayers z... i wish i had more advice to give :/ |
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| Miss Bliss |
What a handsome little guy... I remember meeting him once. :)
You are a wonderful mother and you are strong enough to take life as it comes... I will keep you and Munchy in my thoughts and hope you can all make it through. But remember that you still have a wonderful son who loves you and who will be fine. Good luck Z! Let us all know if we can help. |
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| SID133 |
im not a praying kind of person but for the cause you have mine
good luck |
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| madhattared |
he's def a cute little guy =)
we're here with plenty of prayers |
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| vtec junkie |
| Z your son is in my prayers. Im sorry to hear this but keep your head up girl....Im sure he will turn out just fine. If you every need anything, you know how to get ahold of me.;) |
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| dj tek |
| :( hope everything works out Z, your son is adorable... |
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| blitzm |
 Keep your head up babe! Both you and your son will be in my prayers and like it has been said before me, let us know if we can be of any help! |
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| verndogs |
:(
i'm sorry to hear |
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| ZzZ The Goddess |
Well I just made the appointment with the neurologist, since he is a new patient there the earliest I could get the appointment is 5-17-05 so until then I am going to be nervous as hell. In worse news I found out the doctor we were refered to is dropping out from all insurance in September so if he still needs treatment by then we will have to be transfered to someone else. I dont know how they go about testing but I am sure he is going to be scared to death. He doesnt take to kindly to doctors as it is but what kid does I guess.
I am willing to do whatever it takes and hope for the best. At this point I have to talk to all of the family on both sides to find out if there is any history of mental illness in any relatives because I am sure the doctor will ask. |
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